Education

Teaching

• Informatics
• Qualitative/Mixed methods

Teaching

Programs

Programs

• Nursing PhD

Research

Research activities

• 2022—2025 Michael J Fox Foundation for Parkinson. MPI: Adams, J. & Mammen, J; Identifying bothersome symptoms and impacts of disease and meaningful change over time in patients with early PD and relevance of WATCH-PD digital assessment measures. Role: MPI
• 2022—2025 Michael J Fox Foundation for Parkinson. MPI: Adams, J. & Mammen, J; Identifying bothersome symptoms and impacts of disease and meaningful change over time in patients with early PD and relevance of WATCH-PD digital assessment measures. Role: MPI
• 2024-2026 Parksinson’s Prodromal Markers Intiative. MPI: Adams, J. & Mammen, J; Identifying meaningful symptoms and impacts of prodromal. Role: MPI

Research

Research awards

• $ 20,313 awarded by Michael J. Fox Foundation for Understanding meaningful symptoms of Parkinson's Disease from the perspective of patients and caregivers
• $ 53,235 awarded by UNIVERSITY OF ROCHESTER for PPMI Integration and Investigator Support (Qualitative Symptom Mapping Substudy)
• $ 34,271 awarded by University Health Network | Michael J. Fox Foundation for Assessing Quality of Life in Parkinson's (MJFF-023842)
• $ 76,079 awarded by University of Rochester for WATCH-PD Qualitative Study Extension: Identifying bothersome symptoms, impacts of disease and relevance of WATCH-PD digital measures over time in early Parkinson's disease

Research

Research interests

• Symptom Mapping
• Informatics/Digital Health
• Mixed methods
• Chronic disease

Select publications

• Mammen, JR, Speck, RM, Stebbins, GT…Adams, JL. (2023).
  Mapping relevance of digital measures to meaningful symptoms and impacts in early Parkinson's Disease
  Journal of Parkinson’s Disease, 13(4), 589-607.
  Featured at 2022 Parkinson’s Endpoints Roundtable, Washington DC
• Mammen, JR, Speck, RM, Stebbins, GT…Adams, JL. (2023).
  Relative meaningfulness and impacts of symptoms in people with early-stage Parkinson’s disease
  Journal of Parkinson’s Disease, 13(4), 619-632.
  
• Mammen, J. R., Java, J. J., Halterman, J. S., Berliant, M. N., Crowley, A., Frey, S. M., Reznick, M., Feldman, J. M., Schoonmaker, J. D., Arcoleo, K. J. (2021).
  Development of an Electronic Medical Record (EMR)-integrated smartphone telemedicine program to deliver asthma care remotely
  Telehealth and Telecare, 27(4), 217-230.
  
• Mammen J. R., Elson MJ, Java JJ, Beck CA, ... Dorsey ER. (2018).
  Patient and physician perceptions of virtual visits for Parkinson disease: a qualitative study
  Telemedicine and e-Health, 24(4), 255-267.
  
• Mammen, J., & Rhee, H. (2012).
  Adolescent asthma self-management: a concept analysis and operational definition
  Pediatric Allergy, Immunology, and Pulmonology, 25(4), 180-189.
  

Jennifer Mammen, PhD, is an advanced practice nurse specialized in family and emergency medicine. Her research focuses heavily on understanding the perceptions and experiences of people living with chronic illnesses, such as Parkinson’s disease. Dr. Mammen’s primary agenda is to enable patient voices to be heard in a clear and compelling manner, and to improve understanding between people living with illness, healthcare providers, researchers, regulators and policy makers. In particular, her novel qualitative methods and symptom mapping approaches aim to connect what is important to patients to new digital health technologies in order to support the development of future devices, treatments and clinical outcome measures that align with patients’ needs and values.

Additional links

• External Link

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